May Likes Toronto<p>In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.</p><p>It's <a href="https://beige.party/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a>. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.</p><p>What happens to the people who get long COVID now?</p><p>(This is a thread now.🧵)</p>
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#longcovidawarenessday
20 posts · 14 participants · 0 posts today
Broadwaybabyto<p>It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid. </p><p>We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures. </p><p>Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection. </p><p>This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid. </p><p>It’s time we start processing the trauma of the pandemic and stop living in denial. </p><p>We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.</p><p>Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place. </p><p>Wear a mask. Stay home when sick. Clean and ventilate the air. </p><p>When we all agree to care about the air we share, we can begin to bring about real change.</p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/longcovidawarenessday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarenessday</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a></p>
Shantell Powell<p>Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID. </p><p>Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
ahimsa<p>More quotes:</p><p>"Check out other organizations that fight for Long COVID day in and day out including: </p><p>Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others! </p><p>Share information, check out these groups, donate today!</p><p>Long COVID research care and treatments matter for everyone."</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>3/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
ahimsa<p><a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled. </p><p>In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.</p><p><a href="https://www.youtube.com/watch?v=hQn3kqyAT6w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=hQn3kqyAT6</span><span class="invisible">w</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>2/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://disabled.social/tags/USPol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPol</span></a></p>
ahimsa<p>From <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a>: </p><p>Long COVID Awareness Day<br>March 15</p><p><a href="https://www.meaction.net/2025/03/14/long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/03/14/long-c</span><span class="invisible">ovid-awareness-day/</span></a></p><p>"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> volunteers today."</p><p>Link to video in next post</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>1/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
Hermit<p>Interview with Dr. Putrino on the long term effects of COVID, and not only in people diagnosed with Long Covid. </p><p>“There is more and more literature emerging to show that beyond long COVID, there's also effects that SARS-CoV-2 infection is having on the bodies of the general public that manifest in a way that might be viewed as silent.”</p><p>“And the reality of that situation is that this is a virus that has a lot of very unique qualities that specifically cause immune damage to the host.”</p><p>“For the longest time in the field of immunology, there was the sort of adage that your immune system, you know, needs to be tested every now and again to stay strong. You got to keep it fighting. That's an old-fashioned idea, you know.”</p><p><a href="https://podcasts.apple.com/nl/podcast/quirks-and-quarks/id151485804?i=1000699213418&r=2093" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">podcasts.apple.com/nl/podcast/</span><span class="invisible">quirks-and-quarks/id151485804?i=1000699213418&r=2093</span></a></p><p><a href="https://todon.eu/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://todon.eu/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://todon.eu/tags/LongCOVIDAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVIDAwarenessDay</span></a></p>
Sarah dreams of beans<p>I'm pretty into this framing of "new information about silent health damage from every covid infection", even though it is not new or very silent. I hope it helps some covid deniers rejoin the evidence-based world. Nice one, Quirks and Quarks.</p><p><a href="https://friendhole.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://friendhole.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
Sarah dreams of beans<p>Huge shout out to Bob McDonald for asking David Putrino all the good naive questions about covid on mainstream public radio. Starts at 19:30 or scroll down to that section.</p><p><a href="https://www.cbc.ca/radio/quirks/mar-15-the-silent-long-term-effects-of-covid-and-more-1.7483146" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cbc.ca/radio/quirks/mar-15-the</span><span class="invisible">-silent-long-term-effects-of-covid-and-more-1.7483146</span></a></p><p><a href="https://friendhole.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://friendhole.social/tags/QuirksAndQuarks" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QuirksAndQuarks</span></a> <a href="https://friendhole.social/tags/CBC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CBC</span></a> <a href="https://friendhole.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a></p>
Lapsyrevoltee<p><a href="https://piaille.fr/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> J'ajoute qu'au bout de 5 ans, on aimerait que les grandes orga militantes implémentent des protocoles de réduction des risques sur la transmission par aérosol (dont fait partie le covid) : purificateurs, distrib de masques, etc.</p>
Vicky van der Togt<p>On this <a href="https://mastodon.nl/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a>, I stand in solidarity with all Long Covid patients, and those who are working tirelessly to put a spotlight on this debilitating illness.</p><p>I was fortunate enough to recover after 2 years of struggling with the disease, but most are not so lucky. Just like in 2020, patients around the world are still fighting for recognition, research, and rehabilitation.</p><p>Please, support your local or national Long Covid association 🙏</p>
Stefan Bohacek<p>On this Long COVID Awareness Day, my thoughts go out to the millions who have been directly affected, or care for someone who has.</p><p>Hope you all have someone to lean on in these particularly difficult times, something that still brings you joy. </p><p>Hang in there, we're all in this together! ✊</p><p><a href="https://stefanbohacek.online/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covid</span></a> <a href="https://stefanbohacek.online/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://stefanbohacek.online/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://stefanbohacek.online/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://stefanbohacek.online/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PublicHealth</span></a> <a href="https://stefanbohacek.online/tags/solidarity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>solidarity</span></a></p>
KimK ... one day at a time<p>March 15 is <a href="https://mastodon.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p><p>Everything you don't want to know about <a href="https://mastodon.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a>:</p><p>COVID is <a href="https://mastodon.social/tags/airborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>airborne</span></a>.<br>It's not "mild."<br>Infection damage is cumulative.<br>It makes you more susceptible to other infections and diseases.<br>There is no cure for <a href="https://mastodon.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a>.<br>The <a href="https://mastodon.social/tags/pandemic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pandemic</span></a> is not over.<br>Wearing a <a href="https://mastodon.social/tags/mask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mask</span></a> reduces transmission.</p><p>Source: whn.global </p><p><a href="https://mastodon.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://mastodon.social/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://mastodon.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://mastodon.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a></p>
Denis - The COVID info guy -<p>Today, 15 March, 2025, is <a href="https://aus.social/tags/LongCOVIDAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVIDAwarenessDay</span></a>. We stand with those affected, advocate for research, and raise awareness for better care and recovery. 💙 </p><p><a href="https://aus.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> <a href="https://aus.social/tags/COVIDisNotOVER" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDisNotOVER</span></a></p>
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