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#mecfs

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Here's a little executive function tip based on my Splines Theory.

If you're having trouble starting a complicated and boring task, give yourself time to "load the splines." Splines are just my silly word representing the fact that ADHD and autistic people are more detail-oriented. We have a hard time accessing an idea by its summary, and need to think about the whole system with all its parts (splines) in order to grapple it. This takes time and energy.

But the good news is, reticulating splines is mostly a passive activity. First step, the hardest, is communicating to your brain about what it needs to load.

A few hours ago when I started gathering paperwork for taxes, I felt incredibly overwhelmed and my chronic pain was activated. So I pushed myself to kinda get started (updating my list from last year, opening the email folder, creating some folders on my computer), but then I hit a wall. Under intense overwhelm, I couldn't get started turning those emails into PDFs.

But my brain knows what it needs to do. It just needed time. I entered my passive splines reticulating phase, which can take anywhere from a few hours to a few days. Since I only have a week to get this to my CPA, the sooner I started the loading process, the better. Most of that happens in the background. The hardest part was telling my brain to start, which I did by giving a glance to the body of details I will need to absorb.

Then I went did a couple of hours of paid writing work which my brain normally expects on a Monday (so that went easier). And then back to taxes to see if things were flowing better.

And they are! I still hate it! But now my mind has an understanding of the task and it doesn't seem impossible.

I will work on it until I feel sick and foggy again, then I will pick up tomorrow where I expect it to go even more smoothly.

Here's my 2013 post on Splines Theory of neurodiverse executive function.

#taxes #ADHD #ActuallyAutistic #pacing #MECFS

corbden.com/2013/10/splines-th

www.corbden.comSplines Theory: A Spoons Metaphor for AutismA blog about indie publishing, urban fantasy, and geek culture.
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For examples of scientific harm done to ME/CFS patients see this video by @brokenbattery

It lists many issues, including the CDC renaming the illness in 1988 and the PACE trial, a flawed research study that has not yet been retracted:

youtube.com/watch?v=RiwX9Y0Nbi

"George Monbiot describes the treatment of Myalgic Encephalomyelitis as 'the greatest medical scandal of the 21st century' …'"

Transcript:

medium.com/@abrokenbattery/me-

@mecfs

From Ben HsuBorger at #MEAction:

"Why I Joined a Stand Up for Science Rally"

meaction.net/2025/03/12/why-i-

"I have lived as an ME/CFS 'spoonie' for the past 20 years after I got a virus and never recovered. I’ve spent much of the past 10 years of my career advocating for ME/CFS research at the NIH"

"I don’t want to see the same scientific harms that have happened in the ME community become even more widespread across all of science"

@mecfs

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More quotes:

"Check out other organizations that fight for Long COVID day in and day out including:

Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others!

Share information, check out these groups, donate today!

Long COVID research care and treatments matter for everyone."

@longcovid

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#MEAction has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled.

In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.

youtube.com/watch?v=hQn3kqyAT6

@longcovid

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