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#LongCovid

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Broadwaybabyto<p>It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid. </p><p>We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures. </p><p>Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection. </p><p>This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid. </p><p>It’s time we start processing the trauma of the pandemic and stop living in denial. </p><p>We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.</p><p>Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place. </p><p>Wear a mask. Stay home when sick. Clean and ventilate the air. </p><p>When we all agree to care about the air we share, we can begin to bring about real change.</p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/longcovidawarenessday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarenessday</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a></p>
Shantell Powell<p>Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID. </p><p>Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
ahimsa<p>More quotes:</p><p>"Check out other organizations that fight for Long COVID day in and day out including: </p><p>Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others! </p><p>Share information, check out these groups, donate today!</p><p>Long COVID research care and treatments matter for everyone."</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>3/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
ahimsa<p><a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled. </p><p>In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.</p><p><a href="https://www.youtube.com/watch?v=hQn3kqyAT6w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=hQn3kqyAT6</span><span class="invisible">w</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>2/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://disabled.social/tags/USPol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPol</span></a></p>
ahimsa<p>From <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a>: </p><p>Long COVID Awareness Day<br>March 15</p><p><a href="https://www.meaction.net/2025/03/14/long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/03/14/long-c</span><span class="invisible">ovid-awareness-day/</span></a></p><p>"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> volunteers today."</p><p>Link to video in next post</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>1/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
Hermit<p>Interview with Dr. Putrino on the long term effects of COVID, and not only in people diagnosed with Long Covid. </p><p>“There is more and more literature emerging to show that beyond long COVID, there's also effects that SARS-CoV-2 infection is having on the bodies of the general public that manifest in a way that might be viewed as silent.”</p><p>“And the reality of that situation is that this is a virus that has a lot of very unique qualities that specifically cause immune damage to the host.”</p><p>“For the longest time in the field of immunology, there was the sort of adage that your immune system, you know, needs to be tested every now and again to stay strong. You got to keep it fighting. That's an old-fashioned idea, you know.”</p><p><a href="https://podcasts.apple.com/nl/podcast/quirks-and-quarks/id151485804?i=1000699213418&amp;r=2093" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">podcasts.apple.com/nl/podcast/</span><span class="invisible">quirks-and-quarks/id151485804?i=1000699213418&amp;r=2093</span></a></p><p><a href="https://todon.eu/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://todon.eu/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://todon.eu/tags/LongCOVIDAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVIDAwarenessDay</span></a></p>
Ron Chusid :verified:<p>Today is Long Covid awareness day. An example of the lack of awareness: Last month one of my Long Covid patients died in the hospital. CT scan reported ground glass opacities in the lungs characteristic of Covid but it was ignored. None of the clinical notes made mention of this. <br><a href="https://med-mastodon.com/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://med-mastodon.com/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <br><a href="https://www.longcovidawareness.life/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">longcovidawareness.life/</span><span class="invisible"></span></a></p>
Stefan Bohacek<p>On this Long COVID Awareness Day, my thoughts go out to the millions who have been directly affected, or care for someone who has.</p><p>Hope you all have someone to lean on in these particularly difficult times, something that still brings you joy. </p><p>Hang in there, we're all in this together! ✊</p><p><a href="https://stefanbohacek.online/tags/covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covid</span></a> <a href="https://stefanbohacek.online/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://stefanbohacek.online/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://stefanbohacek.online/tags/health" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>health</span></a> <a href="https://stefanbohacek.online/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PublicHealth</span></a> <a href="https://stefanbohacek.online/tags/solidarity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>solidarity</span></a></p>
Frieke<p>Mooie woorden verschijnen van Fleur Agema online. Dan de daden: ik verwacht van de overheid, van minster en ministerie, een strategie, plan en financiering voor LongCovid.<br>En het zou geweldig zijn als meteen de hele PAIS groep zicht op onderzoek, behandeling en zorg krijg.<br>Geef ons perspectief.</p><p>Zoals ik zijn er vele vele duizenden die zo graag weer willen leven en werken.</p><p>Dit is <a href="https://mastodon.social/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a>. Ik ben <a href="https://mastodon.social/tags/NietHersteld" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NietHersteld</span></a>. <br><a href="https://mastodon.social/tags/longcovidawareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawareness</span></a> <a href="https://mastodon.social/tags/5jaarlongcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>5jaarlongcovid</span></a></p>

Berichten zufolge hielt der #BND schon 2020 ein "Lab Leak" des #Coronavirus für den wahrscheinlichen Ursprung der #Pandemie. Aber bisher gibt's für die These nur wenig wissenschaftliche Evidenz - dafür so manches, das gegen sie spricht. Und nicht nur das. Es ist auch eine Diskussion, von der wir wenig zu gewinnen haben. Andere Aspekte wären viel wichtiger, finde ich. Der Fokus auf #LongCovid und die Vorbereitung auf die nächste Pandemie, zum Beispiel:
spektrum.de/kolumne/covid-und-

Spektrum.de · Die ewige Suche nach SchuldigenBy Michaela Maya-Mrschtik

“If we were to see immune damage manifesting at a population level, it would look like what we’re seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness.”

thegauntlet.news/p/kids-keep-g

The Gauntlet · Kids keep getting sicker as evidence for COVID immune damage buildsBy Julia Doubleday
Continued thread

Upped to 4mg. Noticed LDN seemed to block optimal working of pots medicine 😑 Went down to 3mg and this week after speaking with doctor and decided to test 2 mg for 2 weeks and then 1mg.
All to find the sweetspot of enough ldn to help against pem and no adverse side effects.

So, still guinea pigging. Must say I'm not progressing as much as I'd hoped, but any bit of better I now celebrate.
My #LongCovid life

We're In This Together!

Renegade Research is on a mission to help people manage and recover from #MECFS and #longCOVID. It is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research with a focus on ME/CFS, longCOVID and other infection associated chronic illnesses.

Remission Biome is a project of Renegade Research.

✅️ Learn more: renegade-research.org and remissionbiome.org

(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or #LongCovid ?

"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"

Link:
csiro.qualtrics.com/jfe/form/S

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@auscovid19 #auscovid19

1/

Just got my #MMR #vaccine booster, as I’m old enough to remember getting the very first shot in elementary school. Be aware that some pharmacies are having trouble getting it in stock through their wholesalers. I had to call around town to find one that had it. (For those of you with #LongCovid, I’m not having the total fatigue afterwards that I did with the shingles, Covid and flu shots, even though the MMR contains live virus.)