It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.

We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.

Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.

This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.

It’s time we start processing the trauma of the pandemic and stop living in denial.

We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.

Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.

Wear a mask. Stay home when sick. Clean and ventilate the air.

When we all agree to care about the air we share, we can begin to bring about real change.

https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid

Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID.

Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. #LongCovidAwarenessDay #LongCovid #ChronicIllness

From #MEAction:

Long COVID Awareness Day
March 15

https://www.meaction.net/2025/03/14/long-covid-awareness-day/

"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today."

Link to video in next post

@longcovid

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Interview with Dr. Putrino on the long term effects of COVID, and not only in people diagnosed with Long Covid.

“There is more and more literature emerging to show that beyond long COVID, there's also effects that SARS-CoV-2 infection is having on the bodies of the general public that manifest in a way that might be viewed as silent.”

“And the reality of that situation is that this is a virus that has a lot of very unique qualities that specifically cause immune damage to the host.”

“For the longest time in the field of immunology, there was the sort of adage that your immune system, you know, needs to be tested every now and again to stay strong. You got to keep it fighting. That's an old-fashioned idea, you know.”

https://podcasts.apple.com/nl/podcast/quirks-and-quarks/id151485804?i=1000699213418&r=2093

Today is Long Covid awareness day. An example of the lack of awareness: Last month one of my Long Covid patients died in the hospital. CT scan reported ground glass opacities in the lungs characteristic of Covid but it was ignored. None of the clinical notes made mention of this.
#COVID #LongCovid
https://www.longcovidawareness.life/

On this Long COVID Awareness Day, my thoughts go out to the millions who have been directly affected, or care for someone who has.

Hope you all have someone to lean on in these particularly difficult times, something that still brings you joy.

Hang in there, we're all in this together!

March 15 is #LongCovidAwarenessDay

Everything you don't want to know about #COVID:

COVID is #airborne.
It's not "mild."
Infection damage is cumulative.
It makes you more susceptible to other infections and diseases.
There is no cure for #longCOVID.
The #pandemic is not over.
Wearing a #mask reduces transmission.

Source: whn.global

For International #LongCovid Awareness Day from The Covid Safety Handbook team -- our audiobook chapter Long Covid and Relationships (free; listen in browser, download, and share as you need to).

Link: https://BookHip.com/CDWAWLZ

Today, 15 March, 2025, is #LongCOVIDAwarenessDay. We stand with those affected, advocate for research, and raise awareness for better care and recovery.

Berichten zufolge hielt der #BND schon 2020 ein "Lab Leak" des #Coronavirus für den wahrscheinlichen Ursprung der #Pandemie. Aber bisher gibt's für die These nur wenig wissenschaftliche Evidenz - dafür so manches, das gegen sie spricht. Und nicht nur das. Es ist auch eine Diskussion, von der wir wenig zu gewinnen haben. Andere Aspekte wären viel wichtiger, finde ich. Der Fokus auf #LongCovid und die Vorbereitung auf die nächste Pandemie, zum Beispiel:
https://www.spektrum.de/kolumne/covid-und-die-lab-leak-these-die-ewige-suche-nach-schuldigen/2257430

Keep those #COVID19 vaccinations up to date!

STUDY: "The adjusted RR (95% CI) for developing persistent PCC compared with unvaccinated individuals was 0.81 (0.59-1.10) for 1 dose, 0.42 (0.35-0.52) for 2 doses, and 0.37 (0.27-0.52) for three doses."

Each dose lowers your risk of #LongCOVID.

https://academic.oup.com/jid/advance-article/doi/10.1093/infdis/jiaf133/8071565?login=false

“If we were to see immune damage manifesting at a population level, it would look like what we’re seeing today: big waves of common illnesses. Unusual spikes of uncommon illnesses. Course reversal for previously declining and eliminated illnesses. An unexplained, global wave of sickness.”

https://www.thegauntlet.news/p/kids-keep-getting-sicker-as-evidence?utm_campaign=post

We're In This Together!

Renegade Research is on a mission to help people manage and recover from #MECFS and #longCOVID. It is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research with a focus on ME/CFS, longCOVID and other infection associated chronic illnesses.

Remission Biome is a project of Renegade Research.

️ Learn more: https://renegade-research.org and https://remissionbiome.org

(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or #LongCovid ?

"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"

Link:
https://csiro.qualtrics.com/jfe/form/SV_50apVQ5MHXTReBw

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@auscovid19 #auscovid19

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Just got my #MMR #vaccine booster, as I’m old enough to remember getting the very first shot in elementary school. Be aware that some pharmacies are having trouble getting it in stock through their wholesalers. I had to call around town to find one that had it. (For those of you with #LongCovid, I’m not having the total fatigue afterwards that I did with the shingles, Covid and flu shots, even though the MMR contains live virus.)

This is excellent.

Six years into this pandemic, you’d think people would want their beliefs to match reality.

I don't know about you, but I long for some cognitive...consonance.

https://healthydebate.ca/2025/03/topic/denial-airborne-covid-transmission/

Treatment: The ER’s Embrace

https://www.illmarks.com/treatment-the-ers-embrace/

Today marks the five year anniversary of Covid being declared a pandemic. Some things I want people to remember:

The threat is not gone. People are still dying and becoming disabled every single day

COVID is airborne. It’s always been airborne. Droplet transmission was pushed incorrectly & then doubled down on for economic reasons. If governments admit it’s airborne, they have to spend money upgrading air quality and providing respirators etc.

The only way to avoid Long Covid is to not get Covid.

A well fitted respirator like an N95 offers excellent personal protection

Mask mandates belong in healthcare

If you’re not masking for your patient, you’re abdicating your responsibility to do no harm

It costs nothing to open a window and it will improve ventilation and reduce odds of viral spread. Air purifiers work well too

COVID is a social justice issue. Masks, tests, air filters, paid time off… these things all cost money. The disease disproportionately impacts those who are most vulnerable and multiple marginalized

Repeat infections don’t make you stronger. They don’t give you immunity. They actually harm your brain, heart and immune system. They’re also NOT inevitable

Kids are harmed by COVID too. They need the adults to protect them. We need clean in schools and on school buses

We went “back to normal” for capitalism. It wasn’t because it was safe. It wasn’t because there was a cure. Governments and those in power Are willing to sacrifice us to keep end stage capitalism afloat a little longer

Repeat infections are NOT inevitable. We can still curb the spread. We don’t have to accept constant sickness and disability as our new normal.

May we be in a much better place five years from now than we are today.

If you know someone suffering from Long Covid, reach out to them. Ask them how you can support them. Remind them they’ve not been forgotten. Wear a mask for them. They are counting on you.